And so following From previous post, missed my appointment, welll it is true I did miss it, I did expect a reminder letter that never came, could I have chased it up before yes, could I have called yes, was I relieved that the appointment was missed YES. WHY?? I hear no one say but me talking to me, well I had not got on with Dr Brooke’s Fromm day one really, the 1st time we meet he was expecting someone with out of control sugars as his words said, but one look at my tester and he seemed quite shocked as to the amount of times I was testing and how good they were, in the circs, yes I had previously missed a couple of appointments but this was due to just trying to get on with life and live a little, so all he saw was someone who had missed a few appointments and the last one a pancreas transplant was talked about.
Well we wont be going along that route will we lee, Dr Brooke’s said, erm no whatever you say doc as I was a little embarrassed having missed a few appointments, the main reason for me really getting back on it was my stomach has pretty much taken control of my life now, either its bowel movements, or throwing up and feeling nausea all day.
Couple of weeks ago in a car journey we had to pull over as I could not hold it in anymore, and yes it can be funny, but when it happens on a regular basis to the point I dread any kind of journey I guess the joke stops. Sitting in the cinema and missing 20 mins of a film as you HAVE to go to the toilet.
Anyway back on track so you see the main motivator about seeing the docs full pelt again, I can control my type1 , week as much as a type1 can, I made it clear that this was my goal with Dr Brooke’s,,, I had to try and explain my whole story over again which I very difficult in the short time frame you have at an appointment , I don’t think he quite understood the story but we met got some blood pressure tabs and went on.
Next appointment i think i had the libre and again went through the whole story again, i was asked to to a test, soz i cant remember it off hand but looked it up after and remember thinking it was something i am sure i had been tested on before. It came across that he had not read my file didn’t know what testes had been completed and was guessing and nt actually knowing if this had been completed before.
I went home and stewed a bit got a bit upset and thought i was just going backwards with everything, i had seen so so many docs consultants around the country and you get to realise that they do not know the answer to it all, but its tough to challenge a doc in a room where you have little time and i get a bit flustered if i am honest.
So long story i know, i also know. Am talking to myself, lee you bellend, i had a letter today from the hostpial saying when i took the pump out i signed a contract to keep up on appointments and use the pump correctly etc, i get that , and i should have gone for that reason, but i am using the pump and the libre and testing 15 more times everyday correct carb count etc, so it wasn’t that i was hiding anything from them. Just git bored bored and burnt out of it all. So letter says they will stop the pump if I don’t go to net appointment and to have back up supplies of unslung novo and Lantus.
So this the kick up the arse i knew that if i continued to have Dr Brooke’s as my consultant then i would prob miss another and i need too get this sorted, so i spoke to Emma diabetic nurse at the hospital, and explain EVERYTHING so have managed to get back to Dr Partridge hopefully but wont be seeing Dr Brooke’s anymore.. I feel. MASSIVE relief and weight of the shoulders if i am honest. It needed to happen.
Also on that i am starting the process of aging access to my FULL MEDICAL records to see what tests have been completed and what have not, so in future i can help them understand what has been done ,i do understand i am a very small cog in a massive machine .