erm MEEEEEEEEEEEEEE lol..... its do to with the commissioning work i have been doing.... check me out....
Oh and the Documentry that is being done with me is having a screening/launch at the cinema as well...
well i did want to raise the profile...
Oh and i am meeting with someone on monday to come up with some ideas on how we can publicise the fund raiser on June the 19th.... as yes irs about making money.. but it is more about getting as much coverage as possible....
happy friday everyone....
Blog about my experiences with Type 1 Diabetes and Autonomic Neuropathy the highs and the lows how i try and cope with it feel free to comment or get in touch and share your experiences
Friday, 5 February 2010
Thursday, 4 February 2010
training
Well... i put my fundraiser on facebook... and have just £100 already... i am very lucky this i know... i did some weights today and went aorund the block on the chair... prob suffer tomz.... but hey......
http://www.diabeteschallenge.org.uk/challenge/leenevitt-dontsufferinsilence
http://www.diabeteschallenge.org.uk/challenge/leenevitt-dontsufferinsilence
Wednesday, 3 February 2010
Dont suffer in silence
Ok i have decided to give myself something to focus on... raise awareness and get fit to !!... i am going to use my wheel chair and go along the promanade from near hengistbury head to sand banks... its about 20km... so its not going to be easy.. but it wouldnt be a challenge if it was easy would it.... so get donating please and pass it on to friends family... if you think you can help me then please contact me.. i.e raising awareness of it.... i will keep yoi updated with videos of the training...
here we go....
here we go....
people like me
A peom i came across on my internet travels...
I am not living
I just survive
Trying hard to stay alive
With an illness they call Neuropathy
Which will not usually mean the death of me
The pains and sensations are agony
The smallest draught
Is like fire
My flesh will burn and I will perspire
My feet feel screwed up and very twisted
So normal activities become short listed
With Neuropathy Sleep is hardly ever
As the pain at night is most intense
Which does not seem to make any sense
The body screams in agony as the awful pains wash over me
My muscles spasm my flesh it burns
My legs and feet I cannot feel
I really wish this was not real
The pain it travels up my spine
To my brain like a force gale 9
Surging forcing electric agony
Of course it will not be the death of me
But is this good living I say no but just the same on I go
Up in the morning I look great
Nobody in the world would know my fate
So please remember the word Neuropathy and that out in the world
There are people like me
I am not living
I just survive
Trying hard to stay alive
With an illness they call Neuropathy
Which will not usually mean the death of me
The pains and sensations are agony
The smallest draught
Is like fire
My flesh will burn and I will perspire
My feet feel screwed up and very twisted
So normal activities become short listed
With Neuropathy Sleep is hardly ever
As the pain at night is most intense
Which does not seem to make any sense
The body screams in agony as the awful pains wash over me
My muscles spasm my flesh it burns
My legs and feet I cannot feel
I really wish this was not real
The pain it travels up my spine
To my brain like a force gale 9
Surging forcing electric agony
Of course it will not be the death of me
But is this good living I say no but just the same on I go
Up in the morning I look great
Nobody in the world would know my fate
So please remember the word Neuropathy and that out in the world
There are people like me
Monday, 1 February 2010
Queens SQ
Well the appt came up.... and went to London... Hoping to see DR Mathias... the guy who i have been researching for the past few months. Well i saw someone else whos` name escapes me... anyway as i thought it was about me saying what ws wrong... i hd prepared nd revised!!... there are so mny issues i forget them sometimes!!.. so the end result is they want me to go back in july... for week of tests on my autonomic system.. which i dont ,ind.. i do say that i would do anything.. as long as its worthwhile then i will do it....
so six months till the next progress report....
Thanks Jo x
so six months till the next progress report....
Thanks Jo x
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