A peom i came across on my internet travels...
I am not living
I just survive
Trying hard to stay alive
With an illness they call Neuropathy
Which will not usually mean the death of me
The pains and sensations are agony
The smallest draught
Is like fire
My flesh will burn and I will perspire
My feet feel screwed up and very twisted
So normal activities become short listed
With Neuropathy Sleep is hardly ever
As the pain at night is most intense
Which does not seem to make any sense
The body screams in agony as the awful pains wash over me
My muscles spasm my flesh it burns
My legs and feet I cannot feel
I really wish this was not real
The pain it travels up my spine
To my brain like a force gale 9
Surging forcing electric agony
Of course it will not be the death of me
But is this good living I say no but just the same on I go
Up in the morning I look great
Nobody in the world would know my fate
So please remember the word Neuropathy and that out in the world
There are people like me
2 comments:
When I read your posts it sounds soooo much like my husband he suffering from awful neuropathy and has done for over 10 years, he is now on a naughty dose of oxycodone but wants to come off them as they don't work anymore, but that's another problem in itself coming off painkillers, he is VERY worried what life would be like without them. Your posts are great as when u go to the doctors they really have not got a clue and he has felt like he is going mad as no one believes him and how much pain he is in, they treat him like a junkie who is just looking for painkillers! Last night I slept in minus degree bedroom as he had all the windows open and a fan on his feet to cool them down and stop the burning - u have to laugh at the craziness really!
I have neuropathy, I have type two diabetes. but I tell people I am not just a diabetic. I am a person who often isn't well, but also a poet, writer, artist, academic, mother, friend, human being. Good luck with everything you do. I know it isn't easy. You have given me true inspiriation to aspire and achieve ( I get very depressed about it all) so thanks for that. cheryl.lygo@btinternet.com (chezovitch)also on facebook.
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